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Lou Gehrig's Disease

Saturday, February 16, 2013

Funeral Services for Dan Soyka Set for Monday

A Celebration of Life potluck for Dan Soyka, a young Dunedin man who passed away after a struggle with incurable ALS, is set for Monday, 6 p.m., at the Dunedin House of Beer.

Funeral services for Dan Soyka, a Dunedin man who received an outpouring of community support during his two-year battle with a debilitating and incurable degenerative disease, are set for Monday. Soyka, who not so long ago was the wise-cracking life of the party in his tight-knit group of friends, passed away peacefully in his sleep Wednesday, his friends announced on Valentine's Day. He was 35.  Friends and family members who mobilized to help when he was diagnosed with ALS have kept people informed through their ALS awareness group "Our Friend Dan" Facebook page.  Our Friend Dan announced funeral arrangements Friday afternoon.  Arrangements are as follows: In lieu of flowers, the family asks that donations be made in support of friend …

Friday, January 18, 2013

House of Beer Party Helps Our Friend Dan

Dan Soyka's condition has declined since being diagnosed with incurable ALS, but his friends are determined to help.

As Dan Soyka's illness progresses, his care gets more involved. This time last year, his wife Lisa Soyka, had watched Dan's condition downgrade from his usual wise-cracking, life-of-the-party self to not being able to speak or swallow.  Now his condition is even worse. Dan still uses a syringe to eat and drink through a feeding tube. He breathes with the help of a tracheotomy tube. He's starting to lose the ability to walk, and has an increasing dependency on his wheel chair. He also has to be lifted to use the bathroom. "He doesn't have much leg strength left," Lisa said. Dan, 35, is diagnosed with ALS, an incurable disease that slowly degenerates nerve cells in the brain and spinal cord, in essence, hindering voluntary muscle movement …

Joe Kurtzke

4:42 pm on Friday, January 18, 2013

My heart goes out to Dan and his family. My Aunt had ALS and it was hard to see such a vibrant person become afflicted with ALS. Her mind stayed intact and her view was that she was going to impact as many people as possible so she maintained the fight for a while and was always upbeat. She touched a lot of people with that kind of attitude. ALS is a cruel and expensive ordeal. Lisa is quite …   more ›

Saturday, November 10, 2012

Local Group Seeks Raffle Items to Help Friend with ALS

A tight-knit Dunedin group is in the early stages of organizing its second annual fundraiser party to aid their friend Dan Soyka, a young man living with terminal ALS, and they could use some help.

Friday, July 6, 2012

Pittsburgh Spin-A-Thon Helps Dunedin Man

A group in Pittsburgh is taking to their stationary bikes on Sunday to help fundraise for Dan Soyka, a Dunedin man with ALS.

The fight is far from over for Our Friend Dan. The tight-knit group trying to help their friend Dan Soyka, a recently-wed 34-year-old Dunedin man with ALS, an incurable nueromuscular disease also known as Lou Gehrig's Disease, has a far reach — far enough to reach Pittsburgh, PA, where people are rallying to help him with a fundraiser Spin-A-Thon on Sunday, July 8. At a year and a half after his official diagnosis, Soyka can’t speak or swallow. He uses a syringe to eat and drink through a feeding tube and breathes with a tracheotomy. Medical statistics give an average of three to five years life expectancy after an ALS diagnosis. Some of his Pennsylvania friends, Jon Wright and Cassie Conti, organized a fundraiser Spin-A-Thon, set for …

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